Multiple Sclerosis? Even So, It Is Well
Multiple Sclerosis? Even So, It Is Well
  • Видео 201
  • Просмотров 979 973

Видео

Reduce MS Symptom Severity [New Information!]
Просмотров 833День назад
We can possibly reduce the severity of our multiple sclerosis (MS) symptoms with the foods we eat. There is even more new data showing that what we eat matters!! Eating a diet that is primarily plant based can help us to get phytonutrients that may help to reduce our MS symptoms and possibly reduce progression. *Get your free infographic on the benefits of eating the rainbow!* eat-the-rainbow-i...
Coping with MS - Is MS a Monster?
Просмотров 72714 дней назад
Is MS a monster that we need to fight off? Receiving a diagnosis of a disease that there is currently no cure for and is progressive is hard! How we cope with a diagnosis of MS or other chronic illness matters. Developing coping strategies is essential. How we look at our disease can have a big effect on how we live with it. In this video I share my perspective on how we envision our MS and how...
Managing MS Symptoms: Effective Ways to Reduce Inflammation
Просмотров 1,4 тыс.21 день назад
Managing MS symptoms with medication, diet, and lifestyle changes can help us to live well with our MS. In this video I share information on how MS is an inflammatory disease and tips how diet and lifestyle changes can help reduce inflammation. Reducing inflammation may help reduce symptoms and improve our quality of life. And who doesn’t want reduced symptoms and a better quality of life?! *Pl...
Ginger for MS? Recipes and Tips
Просмотров 583Месяц назад
Ginger may help with gastrointestinal symptoms of Multiple Sclerosis (MS) like constipation, heartburn, nausea, and bloating. The health benefits of ginger may also help with brain function and may help prevent degenerative diseases such as Alzheimer’s, Parkinson’s disease, and multiple sclerosis. In this video I go over what some of the recent research shows and I share some tips and recipes t...
Dangers of Processed Foods - How Toxic Are They?
Просмотров 563Месяц назад
Dangers of Processed Foods - How Toxic Are They? Ultra processed foods (UPF) can be toxic to people with multiple sclerosis (MS) and people with chronic illness. In this video I share results of a recent review that shows just how dangerous these foods are and why we need to avoid toxic processed and ultra processed foods. *Free Handout - How to Make Low Fat Corn Chips and Potato Chips* low-fat...
MS - Adapting to a Diagnosis of Multiple Sclerosis
Просмотров 792Месяц назад
Adapting to a new diagnosis of multiple sclerosis (MS) or accruing disability can be a huge challenge. It can take time and there is a grieving process we go through. There is good news though! We have an amazing amount of resilience and although we may not be ‘all right’, we can be ok! In this video I share 11 things that may help us adapt and adjust to our diagnosis or disability. *Click here...
Common Symptoms of MS and Tips to Help with Them
Просмотров 1,1 тыс.Месяц назад
Some of the more common symptoms of MS are fatigue, pain, spasticity, muscle weakness, walking difficulty, cognitive difficulties, dizziness, sensory disturbances, bladder problems, bowel problems, and depression. In today’s video I am going to share my top 6 tips that can help us to manage these symptoms so we can live well with our MS. To receive your free handout with these tips and resource...
MS, Aging, and Menopause - Tips for all Three!
Просмотров 6102 месяца назад
MS, Aging, and Menopause. They all have symptoms that can overlap. In this video we look at the connections, some of what the research shows, and end with some tips to help manage them all. Soy Beans (as an Amazon affiliate I earn from qualifying purchases) amzn.to/48QiERm Smoldering MS video ruclips.net/video/mLg5i89YRiA/видео.html Ways to Support this Channel Share this video with others rucl...
My MS Story - Lessons Learned Living with Chronic Illness
Просмотров 8852 месяца назад
Living with Multiple Sclerosis (MS) is a lifelong commitment and there are many lessons to learn along the way. In this video I share some of my MS story, how I manage my MS symptoms, and how I have changed over the years as I live with chronic illness. *Videos* Neuroplasticity with Dr. Gretchen Hawley ruclips.net/video/JG8jtqpegC4/видео.html Improve Symptoms with Diet ruclips.net/video/lkN_jCt...
Can Turmeric Help MS? Super Spice or Risky?
Просмотров 8332 месяца назад
Can turmeric help MS and help us with our symptoms? In this video I share what some of the more recent research has found about how the active compound in turmeric, curcumin, may be able to help. *Turmeric Supplement* (As an Amazon affiliate I earn a small commission on each sale) amzn.to/3uIjwtv *Other Supplement Videos* Vitamin D and MS - Are We Taking It Wrong ruclips.net/video/Kw7MWCzRz-4/в...
Inflammation and MS - Can We Reduce Immunosenescence and Inflammaging?
Просмотров 8442 месяца назад
Multiple Sclerosis (MS) and many other chronic illnesses are inflammatory diseases. In this video I talk about Inflammation, Immunosenescence, & Inflammaging and what we can do about them to help us live better with our MS or chronic illness. *The Supplements/Book* (as an Amazon affiliate I earn a commission on each sale) Omega 3s amzn.to/3TkUBWp Turmeric amzn.to/42YZPtV Fiber Fueled Book amzn....
Men and Multiple Sclerosis - Is it Harder on the Guys?
Просмотров 1,9 тыс.2 месяца назад
Men and Multiple Sclerosis. Is it harder on the guys? Men experience multiple sclerosis differently than the ladies. In this video we look at the differences, possible reasons, and what can be done to help! Men experience different symptoms and their MS progression may be faster from RRMS, to SPMS, or PPMS. *Videos* Women and MS - Why We Get It More ruclips.net/video/NMR8mG_9_xI/видео.html Mult...
Women and MS - Why We Get It More
Просмотров 8773 месяца назад
Women get multiple sclerosis (MS) and autoimmune disease more than men do. Is it simply because we exist? There is new research into women, autoimmune disease, and why we get it more. In this video I share what they found in the research. Hint - it isn’t women’s hormones. Ways to Support this Channel Share this video with others ruclips.net/video/NMR8mG_9_xI/видео.html Share this channel with o...
MS Brain Health - Avoid These Dangerous Habits
Просмотров 1,4 тыс.3 месяца назад
Avoid These Dangerous Habits to help your brain health. When we live with multiple sclerosis (MS) or chronic illness our brains may be at more risk than the general population. There are 7 bad habits that we can change to improve the health of our brain and to prevent the negative effects of inflammation and toxins. *The Books* (As an Amazon affiliate I earn a small commission on each sale) Fib...
MS Prodrome Symptoms - What Are They?!?
Просмотров 1,6 тыс.3 месяца назад
MS Prodrome Symptoms - What Are They?!?
Vitamin D and MS - Are We Taking it Wrong?!?
Просмотров 1,6 тыс.3 месяца назад
Vitamin D and MS - Are We Taking it Wrong?!?
My MS Story - How I Improved My Health
Просмотров 2,8 тыс.4 месяца назад
My MS Story - How I Improved My Health
Rollator Walker Review - Stride Mover Ergonomic 4 Wheel Aluminum Rollator Walker by VOCIC
Просмотров 7004 месяца назад
Rollator Walker Review - Stride Mover Ergonomic 4 Wheel Aluminum Rollator Walker by VOCIC
Transform Life with MS with These Tools to Live Your Best Life
Просмотров 1,1 тыс.4 месяца назад
Transform Life with MS with These Tools to Live Your Best Life
Life with MS - Health Benefits of Gratitude
Просмотров 3694 месяца назад
Life with MS - Health Benefits of Gratitude
Typical Symptoms of MS
Просмотров 3,1 тыс.5 месяцев назад
Typical Symptoms of MS
5 Ways to Calm your Nervous System and Ease Symptoms
Просмотров 9725 месяцев назад
5 Ways to Calm your Nervous System and Ease Symptoms
Dealing with MS - Being Optimistic
Просмотров 4255 месяцев назад
Dealing with MS - Being Optimistic
Dealing with MS Symptoms - Breaking the Cycle
Просмотров 9675 месяцев назад
Dealing with MS Symptoms - Breaking the Cycle
The Spoon Theory - Living with Chronic Illness
Просмотров 1,6 тыс.5 месяцев назад
The Spoon Theory - Living with Chronic Illness
Multiple Sclerosis - Even So It Is Well
Просмотров 5276 месяцев назад
Multiple Sclerosis - Even So It Is Well
MS Stories - Why We Create MS Content
Просмотров 4356 месяцев назад
MS Stories - Why We Create MS Content
MS or Vitamin B12 Deficiency - What are the Symptoms
Просмотров 5 тыс.6 месяцев назад
MS or Vitamin B12 Deficiency - What are the Symptoms
Anxiety and MRIs - How I Deal With It
Просмотров 9316 месяцев назад
Anxiety and MRIs - How I Deal With It

Комментарии

  • @gaylaaucoin9075
    @gaylaaucoin9075 3 часа назад

    I know MS it started as a. Kid but went away but came back. Can’t take. The. Heat. Or. Cold .💙🕊️💖🌈🦋😇✝️🛐

  • @jeffreyblaise3198
    @jeffreyblaise3198 День назад

    How old were you

    • @EvenSoItIsWell
      @EvenSoItIsWell День назад

      Thanks for watching. I was 40 when I has my first relapse in 2006 and I was 51 when I received my diagnosis in 2017.

    • @jeffreyblaise3198
      @jeffreyblaise3198 День назад

      @@EvenSoItIsWell thank you so much for sharing your story ❤️. I’ve been listening to your videos all morning. Ive been having this tight (MS hug feeling) feeling across my chest since 2020 and it’s progressed to my lower neck. I’ve spoken to Doctors, had blood test, even a cardiac cath (normal), but Docs seem to never understand or figure out what it is. Noticed low vitamin D levels, high LDL, and high Creatinine Kinase all through blood tests and even floaters (diagnosed by an ophthalmologist that says it’s not of great concern) and “X-ray like floaters” in my vision (not diagnosed). All this seems nerve related. Docs will say you’re fine and say it’s stress. I do feel a bit of comfort knowing that people like yourself can still fulfill a normal life over years with proper management. Hopefully I can find a way to minimize symptoms and continue living a normal life. I’ll be 32 years old May 22nd. Thanks again for sharing

    • @EvenSoItIsWell
      @EvenSoItIsWell День назад

      @@jeffreyblaise3198 Thanks for sharing your story. I encourage you to keep advocating for yourself. Ask for second opinions or referrals if you feel your symptoms are not just related to 'stress'. Diagnosing autoimmune diseases can be difficult to diagnose.

  • @heatherl6712
    @heatherl6712 День назад

    Thank you for sharing this information

  • @patriciahandy8447
    @patriciahandy8447 2 дня назад

    I have all this and my Dr says I am not quite sure. I’m like you have to be kidding me. Help me while I still am able to go. The bug crawling is weird. I constantly hit my legs. I see falling stars when I close my eyes at night.

    • @EvenSoItIsWell
      @EvenSoItIsWell 2 дня назад

      Oh, I am sorry you are experiencing this. I hope the doctor is ordering tests to confirm what is causing it.

    • @patriciahandy8447
      @patriciahandy8447 2 дня назад

      I have floater’s in both eyes. Now testing for glaucoma. 2 back surgeries for bone spurs, spine tap. They have vertigo, nausea. I have been taking meds for 3 years for nausea and vertigo. Terrible spasms in my legs. My right calf hurts terrible. The heat deal is unreal not to mention no sleep.

    • @EvenSoItIsWell
      @EvenSoItIsWell 2 дня назад

      @patriciahandy8447 oh goodness honey, sounds awful. Keep advocating for yourself and seeking answers. Ask for referrals or second opinions. Seek them on your own.

    • @patriciahandy8447
      @patriciahandy8447 2 дня назад

      @@EvenSoItIsWell I have been working on that. I have been asking for more testing also they have checked me for lupus. They say I don’t have lupus but an autoimmune disease. Not sure which one. Have not gotten any farther. They know I have arthritis and osteoarthritis. Who knows.

  • @abaddonmorningstar8871
    @abaddonmorningstar8871 3 дня назад

    TREATMENT WITH BENFOTAMINE. A FAT SOLUBLE FORM OF B1 THAT WILL PENETRATE THE MYELIN AS WELL AS LIONS MANE MUSHROOM

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      Thanks for watching. I have seen some of the early research for Benfotiamine and it looks promising. I really like lions mane too! I use it in smoothies and like to use it meals.

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      @@EvenSoItIsWell Its not research it directly influences Interleukin 1 and TNF alpha production as well as directly inhibiting the breakdown of myelin its shown that extreme thiamine deficiency ( Wernicke’s encephalopathy) mimics MS to the letter and is often mistaken as MS "Does thiamine deficiency cause demyelination? Thus, the combination of increased lipid peroxidation and the decreased fatty acid synthesis can result in demyelination, explaining some of the neurological issues caused by thiamine deficiency" Acetyl-l-carnitine. ... B-Complex Vitamins. ... Alpha-lipoic acid. ... Magnesium. ... Calcium. ... Glutamine. ... Glutathione. ... N-acetyl cysteine. that is a place to start. AN ounce of cure is worth all the support in the universe

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      @@EvenSoItIsWell Its not research. the main reason MS is pathological is the B1 depletion if not extreme deficiency. Its diet mainly. i promise wernickes encephalopathy mimics MS to the point its often mistaken for it and thats caused by B1 depletion its lipid peroxidation caused mainly by B1 depletion as well as other things that causes Demyelination with MS

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      @@EvenSoItIsWell www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/#:~:text=Thus%2C%20the%20combination%20of%20increased,issues%20caused%20by%20thiamine%20deficiency.

  • @jasbaksh41
    @jasbaksh41 3 дня назад

    I’m really interested in this device

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      Thanks for watching. Let me know if you decided to get one and how it works for you!

  • @taradecoste4788
    @taradecoste4788 3 дня назад

    You're very knowledgeable and great at explaining everything. I was diagnosed with M.S 6 years ago. You must be an M.S Doctor. I'm glad i found your channel. 🙂💖

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      Thanks for watching Tara! Nope, not a doctor. I am a person with MS that loves to learn, read research, and share it with others. 🙂

  • @taradecoste4788
    @taradecoste4788 3 дня назад

    Wow!! I love it. Its frustrating when people dont understand.

  • @Sbannmarie
    @Sbannmarie 3 дня назад

    Wow curious which do you pay for out of pocket?

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      I pay for my nutrition coach and massage therapist out of pocket and I have copayments for my doctor’s appointments.

  • @Sbannmarie
    @Sbannmarie 3 дня назад

    Are you on infusions? Thanks. Ocraves?

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      I am currently on the generic of Copaxone, but would consider changing if needed.

  • @Beemgee
    @Beemgee 4 дня назад

    Could having a harder time gripping things be a subtle symptom?

    • @EvenSoItIsWell
      @EvenSoItIsWell 3 дня назад

      Yes it can. If the signals have a hard time getting to our hands it can be hard to hold on to things,

  • @victoriajohnston3219
    @victoriajohnston3219 4 дня назад

    From one Vickie to another ❤ Thank you 🙏🏼

    • @EvenSoItIsWell
      @EvenSoItIsWell 4 дня назад

      We Vickie’s need to stick together! 🥰

  • @tarunchaudhary3958
    @tarunchaudhary3958 4 дня назад

    Hi thanks for the great video, We should avoid Gluten bt the bread you were eating doesn't it contain Gluten? or you can eat Glute?

    • @EvenSoItIsWell
      @EvenSoItIsWell 4 дня назад

      We should avoid gluten if we have Celiac or gluten sensitivity. I do not have either.

  • @jazminetwittytherapper5624
    @jazminetwittytherapper5624 4 дня назад

    You are amazing at doing research, phenomenal at speaking and EXCELLENT at citing your sources! Thank you for providing such great content!

  • @cameronhollingshead4117
    @cameronhollingshead4117 4 дня назад

    My lesions are actually closing. My last MRI, was good. I started taking a mushroom supplement. Lions main, mushroom pills. Try them

    • @EvenSoItIsWell
      @EvenSoItIsWell 4 дня назад

      Thanks for watching. So glad you are doing well! I use lion's mane in my smoothies and I have a local source here and eat them regularly.

  • @totaldepth87
    @totaldepth87 4 дня назад

    I was Dx June 15th 2023. My Dx came FAST and HARD. in January 2023 I went blind in my right eye… and it was Whirlwind of specialist and appointments. I knew I had MS by March but didn’t get the official Dx until June when u heard it from the MS clinic.

    • @EvenSoItIsWell
      @EvenSoItIsWell 4 дня назад

      Thanks for sharing your diagnosis story. How are you doing now?

    • @totaldepth87
      @totaldepth87 4 дня назад

      @@EvenSoItIsWell it’s been a wild ride that’s for sure! Looking back I wonder how long I’ve had MS and didn’t know. I also have ADHD and the neurological symptoms of ADHD and MS almost mirror each other. So that I was questioning if I actually have ADHD… I definitely have ADHD LOL. They say that it’s not hereditary, but I feel like my mom had MS that went undiagnosed because she was also a drug addict and had bipolar disease. But I’m noticing a lot of the things that I do now, are things that my mom had done when she was alive. Ie; random sudden fatigue, walking on my heels because my feet hurt, slurring my words and stuttering, etc. She never got an MS diagnosis because a lot of her complaints were dismissed by the medical community and chalked up as your drug addict and you’re trying to get more drugs. Some days I feel fine other days I feel like a complete bag of garbage. I lost a feeling in my left arm for about a month after my diagnosis, and recently I lost the ability to walk properly with my right leg, fortunately for me all three of my physical flares went away (ON, left arm and right leg) but I’m not the same. I can’t sit in the sun like I used to. And I can’t work as hard as I used to. But I’m fortunate enough to have a wonderful man who wants to take care of me and I don’t actually need to work to survive.

  • @annabentley5705
    @annabentley5705 5 дней назад

    Thank you for the wealth of information that you explain so clearly.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks for watching Anna!

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      TREATMENT WITH BENFOTAMINE. A FAT SOLUBLE FORM OF B1 THAT WILL PENETRATE THE MYELIN AS WELL AS LIONS MANE MUSHROOM

  • @byron2521
    @byron2521 5 дней назад

    I've learned all I know about MS watching RUclips, because my doctor is terrible. She will not tell me anything or refer me to other specialist for my "secondary MS" symptoms, like incontinence. Thanks for the video.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks for watching! I am so glad you find the videos helpful.

  • @laurarosanne
    @laurarosanne 5 дней назад

    You are a good speaker and have chosen an important topic to address. My neurologist said (I got diagnosed january of this year) that my life expectancy will not be shorter, so that’s really positive. Are you in the Living Well Hub with OMS? I recently joined and feel like it’s such a positive community! I will follow the Pathway program soon and am very curious about it. Thank you for making these videos, you feel like a friend to me! 🌷

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks Laura! Yes! I am in the Living Well Hub. It is a great space! I should see if I can get someone from OMS as a guest on my channel.

  • @cassdevericks3422
    @cassdevericks3422 5 дней назад

    This is a difficult topic. Wasn’t sure I was going to watch it, because I don’t like to think about it, but I’m glad I did. Thank you for this video. 🧡

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks for watching Cassi. I wasn’t sure I was going to make it. I wrestled with it for a long time before going ahead with it.

  • @raymondschnell9622
    @raymondschnell9622 5 дней назад

    Happy Mothers Day & thank you for sharing this video on a tough subject. While I have no reason to be suicidal thanks to the unconditional & loving support from family and friends, I am however not thrilled with the idea of living longer. I say this thanks this MonSter in us. Half of my fatigue stems from the fight i give to remain positive & active in my own life. I do eat very well thanks to being a professional chef & researching what foods are good and not good, thankfully I enjoy enough of the healthy foods & I'm strong enough to limit what we shouldn't really have to maintain a healthier life. I do drink water mostly every day & have learned the importance of drinking the recommended Early in the day & less as I get closer to bed time. What I & I'm sure most everyone may prefer, Quality over quantity, if they can reduce or even Better, Eliminate symptoms Before extending average life span then to me That would be far better.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thank you Raymond. I appreciate your comment and perspective.

  • @loripieper3730
    @loripieper3730 5 дней назад

    Not good news to me!I’m suffering with progressive MS and have no quality of life. So I wish I could die now at 60 yrs of age. Having to keep existing on my own with all my horrible symptoms is inhumane & beyond cruel! It’s torture!

    • @JenniO718
      @JenniO718 5 дней назад

      I can relate I'll say an extra prayer for you. Hold tight❤️

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Oh Lori. I am sorry you are struggling. I am sending you much love and comfort. Please do your best to take care yourself yourself as you can.

    • @cameronhollingshead4117
      @cameronhollingshead4117 5 дней назад

      Lori, I'm sorry you're so sick. Try mushrooms.

  • @MinnieOnCam
    @MinnieOnCam 5 дней назад

    I'm 39 living with RRMS my neurologist is very optimistic about my MRI scans and neuro exams and I'm hoping to live with a normal life expectency. Plus I also have to manage living with bipolar disorder so with having two chronic conditions. We'll see how long I live.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Hi Minnie! Thanks for watching. You’ve got this! I have a local buddy who is managing MS and bipolar as well. It can be a challenge but she is managing it beautifully!

    • @MinnieOnCam
      @MinnieOnCam 5 дней назад

      @@EvenSoItIsWell It is a challenge sometimes the symptoms of bipolar /depression / with hypomania gives me a lot of ideas and plans while the MS is the one telling me to sit down and relax.

  • @valeriemoen4441
    @valeriemoen4441 5 дней назад

    Thank you for being the friend I like to listen to. You make having MS easier to live with and function, especially being on my own. I don’t have to explain why I feel the way I do to anyone, you get it. Thank you!

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks Valerie! Is good to have friends that get it. I feel the same about my viewers and community.

  • @nathanmorris9413
    @nathanmorris9413 5 дней назад

    I look forward to your weekly videos they are so informative. Keep up the awesome work.

  • @JenniO718
    @JenniO718 5 дней назад

    I kinda thank God I won't live as long. Waking up daily in this jail is hell. I like sleeping because I dream I'm walking again. Sorry to be so pessimistic but it's the truth. My son is my caregiver i have guilt everyday because he can't do the things he wants to do.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Hi Jenni. Thanks for watching. I am so sorry it has been such a struggle for you. I am thinking of you and sending you good mojo. You are totally allowed to be pessimistic. Living with this can be freaking hard.

    • @JenniO718
      @JenniO718 5 дней назад

      @@EvenSoItIsWell really hard. It torn my marriage apart. So much for in sickness and in health. He was a fixer but he couldn't fix me. I praise God everyday for my son tho, he keeps me going. Ty for all you're content i hope to be more positive one day just today isn't that day. I have zero energy to go see my elderly mother. She understands as both of her daughters have MS

    • @loripieper3730
      @loripieper3730 5 дней назад

      I totally agree! This torture needs to end ASAP!

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      TREATMENT WITH BENFOTAMINE. A FAT SOLUBLE FORM OF B1 THAT WILL PENETRATE THE MYELIN AS WELL AS LIONS MANE MUSHROOM

  • @davidarmstrong7549
    @davidarmstrong7549 5 дней назад

    Thank you for addressing this tough subject. The day i was first told I probably have MS was a terrible day. I was so terrified of what was to come. I thought it was a terminal disease. My Mum said "you can live a long life with MS". This was in 1998, a long time ago! She was obviously right, as Mums often are! There were no drugs for MS back then. As you say, exercise, staying hydrated, eating well, and so on are all things we can do to help ourselves stay healthier. I only wish that back in the day that I could have seen this video. My anxiety would have reduced straight away! You have such a wonderful channel, which is so informative. Keep up the good work! x 👏

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thank you David! Your mum sounds like she had great advice, as mums typically do!

    • @abaddonmorningstar8871
      @abaddonmorningstar8871 3 дня назад

      TREATMENT WITH BENFOTAMINE. A FAT SOLUBLE FORM OF B1 THAT WILL PENETRATE THE MYELIN AS WELL AS LIONS MANE MUSHROOM

  • @ch011718
    @ch011718 5 дней назад

    Thank you for all your dedication and research. This gives me hope!

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Thanks for watching. Yes, there is hope!

  • @SusiesOnTheScene
    @SusiesOnTheScene 5 дней назад

    Thanks so much for this video. 😂This gives me hope that I'll live 30+ more years.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      You totally can live 30+ more years!! Thanks for watching.

  • @128titanic9
    @128titanic9 5 дней назад

    Hi, Thank you for your video. Best wishes and Happy Mother's day. ❤

  • @EvenSoItIsWell
    @EvenSoItIsWell 5 дней назад

    *Suicide Hotlines:* United States 988 Australia 131114 Canada 1 (833) 456 4566 United Kingdom 0800 689 5652 Other Countries: blog.opencounseling.com/suicide-hotlines/

  • @DTM45
    @DTM45 6 дней назад

    Drinking alcohol minimal with Tony Montana as a guess are the only off label medications that work for me. Have tried everything.

    • @EvenSoItIsWell
      @EvenSoItIsWell 5 дней назад

      Nothing wrong with a little drink with Tony.

  • @SmallWorld-dh1sw
    @SmallWorld-dh1sw 7 дней назад

    I'm wondering if estrogen injections would help with MS

    • @EvenSoItIsWell
      @EvenSoItIsWell 6 дней назад

      Thanks for watching. I have read a few articles stating that hormone replacement therapy may help with symptoms but haven’t seen anything about it slowing down the disease or stopping it.

  • @SherisBagofHolding
    @SherisBagofHolding 7 дней назад

    This is my goal, my MS keeps me home bound right now. Not forever.

  • @jaco0712
    @jaco0712 7 дней назад

    Is Sedrate and or CRP elevated with MS? My husbands sed is 116 and crp is 11.1 .. just started autoimmune disorders

    • @EvenSoItIsWell
      @EvenSoItIsWell 7 дней назад

      Thanks for watching. I am not a doctor, but took a quick look at a couple of research papers. They said that they can be elevated, but there isn’t evidence of the levels being directly tied to disease activity or severity. I try to keep my CRP low as it is a marker of inflammation and MS is an inflammatory disease.

  • @katelyn3997
    @katelyn3997 7 дней назад

    I was diagnosed with MS yesterday , I’m 67. I was 29yrs old, when I had nerve conduction tests & a lumber puncture. The neurologist said probable MS come back when you get new symptoms or symptoms worsen. I tried to do that , but there was always a 3mth wait for the appointment so by the time it came around I was back to normal so I canceled One time I was at a urologist, my leg went to sleep and when he called for me I fell. The urologist said I should be seeing a neurologist not him when he found out about the other symptoms & that I I’d had similar symptoms a few months earlier. He immediately rang the neurologist & 15 min later I’m seeing the neurologist. He said the urologist told him I had the same symptoms in January, why didn’t you see me then? I explained , I rang for an appointment in January but appt was in March, just before that the symptoms went away so I cancelled. At the same time I was reading about "yuppy flu", chronic fatigue syndrome. My symptoms seem to fit this condition so I went to see a specialist in CFS. She diagnosed me with CFS/ME. For 15 yrs I knew I had CFS/ME, but I also had a lot of MS symptoms that didn’t fit CFS/ME (I was a registered nurse). At that time I saw a physician who had a special interest in ME/CFS. He told me to return to a neurologist as soon as possible as possible because he believed I had both MS & ME/CFS, that one could be secondary to the other.. I went back to the neurologist who had I’d seen 15 yrs earlier & he did another set of nerve studies & sent me for an MRI. He said it was inconclusive. Over the years since then I’ve had many flare ups, at first the symptoms would go away each time, but then I stopped going back to normal after every flare up. My legs have got weaker, I have lots of permanent numb parts of my body & the fatigue has taken a toll on my quality of life. I had to stop working, then going out and now my world has shrunk to my home. Last week I had 2 falls, then I thought I had an UTI, then left sided weakness, tremors & parasthesia. My left foot, left arm (from scapula to hand) & thighs are numb. I can’t put my pants, socks or shoes on. I’m having a lot of trouble walking, my gait is off, I feel off balance like I’m going to stumble & fall plus I have to concentrate on how I place my feet as I keep tripping over my toes. This has happened multiple times over the years. Apart from an 18mth period around 2004, I had these sort of symptoms twice a year they last about 6weeks. I went to see my doctor a few days ago wearing a dress & thongs (flip flops), she remarked on my clothing seeing we are going into winter here. I told her about not being able to lift my legs or control my legs enough to wear pants or shoes & socks. That lead to me telling her about all my other symptoms at the moment. Next thing I’m having a brain & spine MRI. First time I’ve ever had tests while I’m in a flare. It’s 50 yrs exactly since my first symptoms & 38yrs since a neurologist said I had possible MS. I would have been diagnosed far earlier if I hadn’t stopped seeing the neurologist or if I had actually told a doctor about ALL my symptoms. I didn’t want to sound like a hypochondriac so only mentioned the symptom that was bothering me most at the time. I only ever told a doctor all the symptoms I was experiencing at the time I saw them 3 times. Funny how all 3 of them thought I had MS. I was my own worst enemy, I now wonder if I would have had a better quality of life if I’d been diagnosed and treated earlier.

    • @EvenSoItIsWell
      @EvenSoItIsWell 7 дней назад

      Thanks for watching and sharing your story. It is hard when our symptoms relapse then remit. We’re never quite sure. I am glad you finally have an answer and now perhaps you can get treatment and therapies that can help.

  • @user-zb1su8rt3t
    @user-zb1su8rt3t 7 дней назад

    Thank you for your video. You are a beautiful person. I have been very sick Thank you

    • @EvenSoItIsWell
      @EvenSoItIsWell 7 дней назад

      Thanks for watching. I am sorry you have been sick. Please keep advocating for yourself and taking exquisite care of yourself.

  • @kenwang9672
    @kenwang9672 7 дней назад

    It’s the sugars that attack the brain and nervous system.

    • @EvenSoItIsWell
      @EvenSoItIsWell 7 дней назад

      Thanks for watching. Processed sugars are definitely inflammatory.

  • @murderyourlawn
    @murderyourlawn 8 дней назад

    How do you find a physiatrist who has interests outside of sports medicine?

    • @EvenSoItIsWell
      @EvenSoItIsWell 8 дней назад

      My husband had seen him for a back problem. He really liked him, so I went to see him.

  • @theevilswan4053
    @theevilswan4053 8 дней назад

    Thank you for this video! I feel like each of us can feel when certain foods are not right for us. For example, I feel my symptoms worsen when I eat gluten or use sunflower oil specifically. Carbonated drinks also make me bloated and give me inflammation almost immediately

    • @EvenSoItIsWell
      @EvenSoItIsWell 8 дней назад

      Thanks for watching. Good on you for being in tune with your body and how foods affect it.

  • @jazminetwittytherapper5624
    @jazminetwittytherapper5624 9 дней назад

    Thank yoooouuuuu !!! ❤ I had a hard time trusting “plant based” meats … so I just switch to fruits veggies and water! It’s working out so far.

  • @victoriousms3818
    @victoriousms3818 9 дней назад

    as always agree ❣️ 💯 🙏🙌

  • @victoriousms3818
    @victoriousms3818 9 дней назад

    Yes, yes, and yes, Ms. Vicky ❤ I love it and agree with everything that was said here, and I also feel like my mental health has very much benefited from the improvements I've made to My diet! I see you making these great content out here 🙋‍♀️

    • @EvenSoItIsWell
      @EvenSoItIsWell 9 дней назад

      Yes! You are so right, our mental health definitely can benefit too!

  • @angeliquetamsinpotgieter1165
    @angeliquetamsinpotgieter1165 9 дней назад

    Wow OK I Please need some sort of answer to this, I believe this can fully work for the body functions, but what about eyes?? I have been told my Optic Nerves have been so attacked the myelin is depleted and I have atrophied Optic Nerves!. No one has answers for my, my vision is poor and fully legally blind in my right little better in my left, I am so scares, can my eyes be helped?? Thank you

    • @EvenSoItIsWell
      @EvenSoItIsWell 9 дней назад

      Hi Angelique, I can't give medical advice. I will share that some have seen some improvement in vision after a relapse but it may not fully return.

    • @angeliquetamsinpotgieter1165
      @angeliquetamsinpotgieter1165 8 дней назад

      @@EvenSoItIsWell yes at a point my vision did return but with having had over 10 ON attacks 6 which were bilateral, I am now legally blind in right and about 50/60% left but I have atrophied Optic Nerves and Visual Snow on top of all this, I am a walking off balance neurological disaster 😳😅

    • @EvenSoItIsWell
      @EvenSoItIsWell 8 дней назад

      @angeliquetamsinpotgieter1165 oh honey, I am sorry that is happening. “Neurological disaster” sounds like a great title for a blog or book. 😉

  • @angeliquetamsinpotgieter1165
    @angeliquetamsinpotgieter1165 9 дней назад

    I really love your outlook, I was diagnosed in 2022 finally after years of not knowing what the hell was going on with me. Ive probably had MS for about 10 years! I'm 32 with 2 little ones and no father involved so it is a big challenge having this disease, but I need to remember I'm not dying from it, I'm here, it has however taken much of my sight😢

    • @EvenSoItIsWell
      @EvenSoItIsWell 9 дней назад

      Thanks for watching! I am so glad you find the video helpful!

  • @wsegen
    @wsegen 9 дней назад

    Thanks. About 20 years ago i had an OPEN MRI in Germany for low back (L5-L3). Brought the film back to UCSF (san francisco) and my doctor said they were very good images. The MRI was truly open, and my claustrophobie did not act up. The machine looked like the hitachi oasis tesla 1.2.

  • @wsegen
    @wsegen 9 дней назад

    Thanks. You are not alone, nor are you there to sell the machine or pooh pooh "patient comfort".

  • @alisonbamford6723
    @alisonbamford6723 11 дней назад

    We should be able to get B12 from bread. Bread? Yes, Bread. Slow rise bread made from nutrient-rich ancient whole grain, using natural multi-strain sourdough fermenting agent. But few of us are able to get or make highly nutritious bread now, sadly. Most of our bread is made using highly hybridised grain, loaded with chemicals & stripped of its nutritional powerhouses, the germ & bran. What is left is then made into ‘bread’ using additive ‘improvers’ & made the fast-track Chorleywood way - churned out within one to two hours which does not allow for the much longer ferment needed to generate all the extra nutrients, including B12. It also only uses one strain yeast ‘Saccharomyces Cervisiae’ which generates carbon dioxide for rising, but not all the lovely B Vitamins.

    • @EvenSoItIsWell
      @EvenSoItIsWell 11 дней назад

      Oh? Interesting! I had not seen that. I will,definitely look into it!

  • @jazminetwittytherapper5624
    @jazminetwittytherapper5624 11 дней назад

    👋 Thank you! Did you take a communications course? You have amazing communication skills and you’re very knowledgeable in MS. It is really helpful to me because lately, I’ve been on bed rest. I’ve just about watched half of your videos. Thanks for helping us!

    • @EvenSoItIsWell
      @EvenSoItIsWell 11 дней назад

      Thank you! No communications but I have had my own Virtual Assistant business for 20 years. Lots of experience working with my clients. I have been learning along the way with my MS diagnosis and I really like reading the research. 🧐 I am sorry you are on bed rest. I hope you are up and about soon!

    • @jazminetwittytherapper5624
      @jazminetwittytherapper5624 11 дней назад

      @@EvenSoItIsWell I think that is amazing! I am currently majoring in English however I am having trouble finding a career where I could teach literature, grammar etc. I do a lot of research in those areas. Now MS too.Thank you for your kind wishes.

    • @jazminetwittytherapper5624
      @jazminetwittytherapper5624 11 дней назад

      I meant “use” not teach! I don’t really want to be a teacher

  • @jazminetwittytherapper5624
    @jazminetwittytherapper5624 11 дней назад

    Thank you 👋 😊